How many other people could participate in this study?

Ultimately, every person who receives healthcare at Barnes-Jewish Hospital and/or Washington University School of Medicine might participate.

How long will I be participating in this study?

If you agree to take part in this study, although your involvement will only consist of providing us with permission to include you in the BioBank, your biological samples and EMR data will remain in the study indefinitely or until you later decide to withdraw from the study.

What are the benefits of this study?

You will not benefit from being in this study.  However, we hope that, in the future, other people might benefit from this study because your biological samples and EMR data will be used to advance science and better understand the genetic basis of certain diseases. The research discoveries may also allow for more personalized therapies for patients in the future.

Is being in this study voluntary?

Taking part in this research study is completely voluntary. You may choose not to take part at all. If you decide to be in this study, you may stop participating at any time. Any data that was collected as part of your participation in the study will remain as part of the study records and cannot be removed.

If you decide not to be in this study, or if you stop participating at any time, you won’t be penalized or lose any benefits for which you otherwise qualify.

Will I be paid for participating in this study?

You not be paid for being in this research study.

Will is cost me anything to be in this study?

You will not have any additional costs for being in this research study.

Who is funding this study?

The University and the research team are not currently receiving payment from other agencies, organizations, or companies to conduct this research study.

What if I decide later to withdraw from the study?

You may withdraw by telling the study team you are no longer interested in participating in the study or you may send in a withdrawal letter to Teresa Roediger . A sample withdrawal letter can be found here under Withdrawing from a Research Study.